Patient perspectives and involvement in precision medicine research

Kidney Precision Medicine Project

Research output: Contribution to journalComment/debatepeer-review

Abstract

The Kidney Precision Medicine Project will advance understanding of chronic kidney disease attributed to diabetes or hypertension and acute kidney injury through a protocol kidney biopsy used for deep phenotyping with state-of-the-art methodology. To guide scientific inquiry toward clinically meaningful benefit, patients are equal partners for priority setting, study design and conduct, and dissemination of findings. Patients from stakeholder organizations, recruitment sites, tissue interrogation sites, and the Central Hub are represented on the Community Engagement Committee. This unique collaboration between patients and scientists has set a new standard for inclusion in precision medicine research.

Original languageEnglish (US)
Pages (from-to)511-514
Number of pages4
JournalKidney International
Volume99
Issue number3
DOIs
StatePublished - Mar 2021

All Science Journal Classification (ASJC) codes

  • Nephrology

Keywords

  • acute kidney injury
  • chronic kidney disease
  • diabetic nephropathy
  • kidney biopsy
  • patient involvement

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