TY - JOUR
T1 - Ethical, anticipatory genomics research on human behavior means celebrating disagreement
AU - Martschenko, Daphne Oluwaseun
AU - Trejo, Sam
N1 - Publisher Copyright:
© 2021 The Authors
PY - 2022/1/13
Y1 - 2022/1/13
N2 - Despite the many social and ethical considerations in human genetics, researchers and communities remain largely siloed as for-profit, direct-to-consumer genetic testing and the application of polygenic scores to in vitro fertilization services become increasingly prevalent. The multifaceted challenges facing genomics, both empirical and ethical, require collaborations that foster critical dialogue and honest debate between communities inside and outside the research enterprise. This piece argues that in order to respond to the premature or inappropriate use of genomic data in industry, the scientific community needs to first embrace, understand, and be in dialogue about its disagreements. We introduce the research framework of adversarial collaboration as a way to celebrate disagreement and productively work toward policy-informed, ethical, and anticipatory genomics research.
AB - Despite the many social and ethical considerations in human genetics, researchers and communities remain largely siloed as for-profit, direct-to-consumer genetic testing and the application of polygenic scores to in vitro fertilization services become increasingly prevalent. The multifaceted challenges facing genomics, both empirical and ethical, require collaborations that foster critical dialogue and honest debate between communities inside and outside the research enterprise. This piece argues that in order to respond to the premature or inappropriate use of genomic data in industry, the scientific community needs to first embrace, understand, and be in dialogue about its disagreements. We introduce the research framework of adversarial collaboration as a way to celebrate disagreement and productively work toward policy-informed, ethical, and anticipatory genomics research.
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UR - http://www.scopus.com/inward/citedby.url?scp=85122263212&partnerID=8YFLogxK
U2 - 10.1016/j.xhgg.2021.100080
DO - 10.1016/j.xhgg.2021.100080
M3 - Short survey
C2 - 35047864
AN - SCOPUS:85122263212
SN - 2666-2477
VL - 3
JO - Human Genetics and Genomics Advances
JF - Human Genetics and Genomics Advances
IS - 1
M1 - 100080
ER -